Coppered® Signature ME/CFS pendants fundraising to help solve ME/CFS

A beautiful way to help solve ME/CFS

ME/CFS research is under-funded

Fundraising for research is challenging because there's never enough to meet the need.  And with the world in a cost-of-living crisis things are likely to get worse.  This isn't great news for people suffering from a condition called Myalgic Encephalomyelitis, Chronic Fatigue Syndrome ME/CFS because they've faced research under-funding for years.

ME/CFS is a complex multi-system disease with many symptoms that may change over time and can differ from patient to patient. The most common issues are worsening of symptoms after any exertion, unrefreshing sleep, profound fatigue, brain fog, orthostatic intolerance and pain.  The cause of ME/CFS is unknown and there are no diagnostic tests or definitive treatments for it. Millions suffer worldwide, so it's ridiculous that it receives so little funding.

I want to help fundraise for ME/CFS, but before I get into how I'm going to do this, let's understand the need.

Millions of people suffer from ME/CFS and Long Covid

According to an article published by ME Action, Scotland,  the Center for Disease Control (CDC), 1.3% of adults in the US have ME/CFS.  Prior to Covid-19, 17 - 24 million people worldwide were affected by the illness.  However with the arrival of Long Covid, Open Medicine Foundation estimates are now 85 million people with chronic illnesses like ME/CFS and Long Covid. 

The Economic Burden of ME/CFS

According to an article published by ME Research UK, central research spend per patient between 2006 and 2015 was just £40 compared with £320 for those with rheumatoid arthritis, and £800 for those with multiple sclerosis.  It makes no sense that ME/CFS receives comparatively little funding given the impacts of the illness.  It's estimated that 70% of patients are unable to work and 25% are homebound. This is a significant economic burden for nations.

Furthermore, in Australian research
it has been estimated that the societal costs of ME/CFS are approximately $63,400 per annum per patient. This becomes a staggering number when applied to those who suffer.  But there's more to ME/CFS than the financial cost.  There's a human cost too.

The Human Cost of ME/CFS 

There is so much unknown about ME/CFS.  With no definitive tests, varied and vague symptoms, and little in the way of treatments, many patients are left to cope on their own.  Fortunately I've mostly recovered, but there are many who don't.  Imagine lying in a dark room for months or years, unable to tolerate noise, light or the smell of food. Where every movement feels like a marathon and your body aches from head to toe. This is what it's like to have severe ME/CFS. It's appalling that people are left to suffer like this.

A fundraising initiative to help solve ME/CFS

If ME/CFS remains unsolved, the long term impacts will bite hard.  It should receive more funding than it does, but despite the obvious need it's just not happening.  Instead of accepting this, I've decided to do something constructive. I've developed a fundraising initiative to contribute to ME/CFS research.

Coppered® ME/CFS signature jewellery, fundraising for ME/CFS

Coppered® ME/CFS signature jewellery carries a logo specifically designed for our community. I've tried to create something, subtle and beautiful that we can wear daily to feel connected to each other.  It's for patients, parents, siblings and friends of people impacted by ME/CFS.  I hope to help find a cure for ME/CFS by donating 100% of company profits to research.

If you like the sound of this fundraising initiative, you can find out more here. But before you go, I need you to trust that any money raised will go to credible research.  I'm working with Open Medicine Foundation to ensure it does.

Sally Cox
Founder | Coppered Company

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