Open Medicine Foundation logo, solving ME/CFS

Why Coppered® is supporting Open Medicine Foundation

ME/CFS often starts with a bewildering journey to your diagnosis

If you live with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), or you care for someone who does, it’s likely that you experienced a bewildering journey to your diagnosis. That is until you discover organisations like Open Medicine Foundation OMF, which I will come to shortly.

Your journey will be bewildering, because 9 times out of 10 there's a lengthy period of clinical assessments with very little in the way of insights. You face the frustration of feeling completely broken, yet being told that there’s ‘nothing to see here’.

For me this process was also humiliating. At times I felt like a complete fraud. I would go out of my way to explain to clinicians that I wasn’t a malingerer who enjoyed being ‘sick’. In fact I often apologised for even showing up.  I wanted to be fixed yesterday, but everyone kept telling me there was nothing to fix.

Fortunately about two years into my illness I discovered Open Medicine Foundation which  was like finding Willy Wonka’s golden bar. I couldn’t believe what was on offer for someone like me. There website has a wealth of information, stories, hope and most importantly a network of world class chronic illness specialists with the same goal in mind - solving ME/CFS!

Open Medicine Foundation is led by Linda Tannenbaum, a complete super star! Linda is the Founder and CEO/President of the organisation which she established after her 16-year-old daughter came down with ME/CFS in 2006. At the time, she was told there was no diagnostic test or treatment for the devastating disease that was preventing her daughter from leaving her bed and living her life. After researching options, Linda realized that open, global collaborative research into the disease was lacking, along with research funding.   So instead of accepting this, in 2012 she established OMF. 

Open Medicine Foundation (OMF) now leads the largest, worldwide non-profit effort to diagnose, treat, and prevent chronic, complex diseases such as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Post-COVID Syndrome, Post-Treatment Lyme Disease Syndrome (PTLDS), and Fibromyalgia.

A Kiwi makes contact with OMF

When I was first establishing Coppered®, I contacted Linda all the way from down-under New Zealand. (Check the map! We're literally at the bottom of the globe).  I'm a great believer in starting with the end in mind, and visualising success.  I want to work with organisations I could trust to direct profits to quality research.   So I sent an email to Linda Tannenbaum and couldn't believe it, when I got a response, almost straight way.  

Linda offered to have a Zoom chat so I could explain my story and my idea. She was so generous with her time and enthusiasm and offered to connect me with some wonderful people within OMF.  I realised that Linda walks the talk. OMF is completely open to collaboration and so committed to seeing ME/CFS and other chronic illnesses solved. Her energy is inspiring.

Coppered® will donate 100% of profits to ME/CFS

My mission is to help fundraise for critical ME/CFS research.  I will donate 100% of company profits to organisations like OMF who are working so hard on our behalf.

If you would like to see ME/CFS solved faster, please consider buying your favourite piece of Coppered® Signature Jewellery. You can learn more about Coppered® here. And if that's not possible, perhaps you'd like to donate directly to OMF.

 

Organisations like OMF need our help. If I'm able to help them, I will. 
Please help me, to help them.

 

Sally Cox

Founder | Coppered Company

×