Girl wearing Coppered® ME/CFS Pendant necklace and Vintage Leather Bracelet, fundraising for ME/CFS research

Why WE Should Fundraise for ME/CFS Research

The Burden of ME/CFS

In one of Cort Johnson's, Health Rising, brilliant ME/CFS research summaries, he states that the ME/CFS disease burden, is double that of multiple sclerosis, and much higher than HIV/AIDS. Myalgic Encephalomyelitis, Chronic Fatigue Syndrome ME/CFS is a chronic, multisystem and complex illness that affects over 20 million people worldwide. Open Medicine Foundation, OMF says that it costs the US between 36 and 51 Billion per year.  You'd expect the allocation of central government funding to correlate with disease burden, however despite the massive numbers, ME/CFS has one of the lowest levels of funding. Go figure!

Although we'd like this situation to be different, simply hoping that things will change feels futile.

Life in 10-year chunks

Someone once told me to consider my life in 10-year chunks and to make plans for each block.  I’ve just ticked into my 10th year of living with ME/CFS and I’m still waiting for a cure.
I've decided that I'm sick of waiting, so am committing a portion of the next ten years to helping solve ME/CFS in the only way I know how.

Fundraising for ME/CFS research

Unfortunately I'm no scientist so I can't head into the lab, to lend a hand.  However I've spent years in business growing and scaling brands. I'm using these skills to develop a new fundraising initiative, which I hope will result in funding for more ME/CFS research.

Coppered® ME/CFS Signature Jewellery

I've created a range of jewellery as a fundraising mechanism for ME/CFS because I want our community to have something to wear as a daily connection to others. I thought it would be nice if we could recognise each other through something subtle and beautiful. ME/CFS will benefit, as 100% of profits from sales proceeds will be donated to research. 

The challenge ahead for ME/CFS research

Every good plan should start with the end in mind. According to Jarred Younger, a Neuroscientist, at the University of Alabama, it takes about USD50,000 to fund a medical research pilot study, which is a necessary precursor to a fully-fledged clinical trial. A full clinical trial comes in at about USD2M. My dream goal is to be able to fund ten pilot studies through sales of Coppered®.

Coppered® ME/CFS Signature Jewellery is only an idea, without your support. It's important that you trust that I will do the right thing by our community, which is why any profits raised, will be donated to Myalgic Encephalomyelitis, Chronic Fatigue Syndrome research through organisations like OMF.

If you are impacted by ME/CFS or know someone who is, please visit Coppered® and consider pledging your support.  With your support we might just fund a cure.

Sally Cox | Founder Coppered Co.

Photo by Markus Winkler on Unsplash